My personal experiences on living with IBD, from daily life to having major surgery. How to train for an Ironman while dealing with this disease, and general life issues.
Monday, June 4, 2012
Going without a vehicle?
Here is what I see happening at first. Use the bike to go to school(15 mile one way trip), going to the gym(1o mile one way trip) and anything else local that is to far to walk to. Who knows where this will take me but I think it is well worth the try. I did a rough estimate and on the amount of money I spend on gas every year and it is well over $3000 just for normal driving, not including trips anywhere. Now I just have to figure out which type of bike is the best for this job, it's not going to be the tri bike, I know that for sure.
As for the recovery, things are progressing quite nice. The incision is still open about a quarter inch or so and still leaking out fluid slowly. The abdomen is feeling stronger and not nearly as sore as last week. I am able to ride a bike for 45 mins, elliptical for 45 mins, no running or swimming yet. I can't lift much yet either, you can feel the pressure on the abdomen when ever you pick anything up. Spent an entire day on the go yesterday driving and walking around the Erie area, this was probably the best day I have had out in years. Feeling very optimistic that things are going to be greatly improved this week as well. I will post a few new pics if I can talk the Doc into taking the rest of the staples out tomorrow.
Wednesday, May 30, 2012
Training after major surgery
So here is were I differ from some people, I can't stand sitting around so I took my tri bike out for my first ride since surgery. I did a nice and easy 9 mile ride in 45 mins. I just need to get moving again. Now I have been walking since the day after surgery and can walk over a mile without major discomfort and I have been riding lightly since 5 days out of surgery 4-6 miles on a comfortable mountain bike. I did not get in the aero position, kept myself upright and when you hit bumps in the road that is pretty uncomfortable. Other than that it felt great to get back out there again. After the ride I had some slight discomfort walking around but that went away after 5 minutes or so. I also had some minor leakage and was able to squeeze the rest out after the ride. That is one of those things you need to talk to your Dr about. Mine said it is not to serious(the leakage) and he did not tell me to not exercise so this is what I told my mother how I felt about it, "I hope he doesn't think I am smart enough not to train." Take it as you will but I am just going by how I feel and until he tells me differently I will keep on going. I am not able to run yet and it might be sometime before that happens. Believe it or not but I can not wait to go for a swim. I must be feeling good because I hate swimming lol.
One thing I can say about exercise, I am recovering at least 2 times faster than the initial surgery 6.5 years ago. I was not in shape back then, I was smoking and drinking as well. This is enough to prove to me that not only does exercise make you feel and look better, it also seems to greatly improve your recovery from major surgeries, at least this is my experience.
I will keep the post coming as my progress continues and hopefully one will be about running pretty soon, I do miss my long runs.
Sunday, May 27, 2012
10 days post op
I wanted to post some updated pics to show the incision recovery but I was to busy trying to reattach my belly tonight and forgot to take the pics before all the sterri-stripps were put on, maybe next time. I have been reading a new book called The Second Brain written by Michael D. Gershon, M.D., it is about the function of the intestine and how it is controlled by a separate nervous system than the brain/spinal cord nervous system. I will post anything interesting I might read there, it is fairly technical reading so it might take me sometime lol. Thats all I have for now, congrats to all the Buffalo Marathon finishers today, wish I could have been there.
Monday, May 21, 2012
Ist full day out of hospital
All in all I feel I am doing great for having had major surgery less than a week ago. I have about a 4 inch incision just below the belly button and the closed opening from the ostomy. The Dr was able to use the old incision so I won't have any new scars for the major incision, just the scar from the opening.
Day4 |
Day 5 |
Saturday, May 19, 2012
First Meal and First Gross Pic
Thursday, May 17, 2012
T Minus 1 hour
Wednesday, May 16, 2012
Survived the flush out
Half way through the day and 6 pills down
24 hours
Tied to a toilet for at least 3 hours, and you will learn the real meaning behind explosive diarrah. I know I know this just sounds amazing and if y'all are so lucky you may also get to try this someday(and if you are over 50 or experience any bowel discomfort please talk with your DR/Gastroenterologist and get checked out. A simple colonoscopy can catch colon cancer and safe your life). There's my PSA for the day. Please don't take this as me complaining I am just trying to explain what a day in the life of someone who has IBD/IBS can be like. No this isn't everyday but for me personally theirs is the 2nd surgery and 7 bowel prep in the last 6 years. So it has become somewhat of a joke around my house now. So as I finish my black coffee I will sit here and contemplate doing my last 7 mile run. Maybe I will have some nice orange Gatorade first:-). May y'all have a blessed day and please pray for me and my doctors over the next few day. I will keep y'all posted and I promise some gross pics if you want em.
Tuesday, May 15, 2012
Final Junk Meal
As for the Ironman training, that is going to be put on hold for awhile. I got in a wonderful final bike ride today and the weather was perfect. Will get in one more easy run tomorrow then I'll be done until the Dr. clears me, unless I think I feel good enough:) I hope I am able to come back quickly, things have finally started to click with all the training and I just had a 5K PR on Saturday, 22:23. If anyone has any helpful hints on a quick recovery from abdominal surgery please off any advise. Thinking of asking the Dr. if HGH would be helpful.
All I ask of is prayers for a successful surgery and quick recovery. If I can I will post some gross pictures of the surgery if the Dr will give me some. I will probably have multiple post coming soon during recovery as I will be very bored. Keep up the training and get some rides in for me.
Sunday, April 29, 2012
Getting Closer to the Big DAY!
As for my surgery, I am most worried about the post surgery and how my bowels are going to act. I will probably keep myself on a pretty bland and strict diet to start but if anyone has ever dealt with IBD/IBS and has an thoughts or helpful hints, please let me know. I will also have at least 4-6 weeks off of training, not sure how well I will handle that part. I have not gone more than 2 days without training in the last year, who knows maybe I will come back even STRONGER!
Time to get ready for another week of work and see if I come up with anymore big ideas. Still plan on the Buffalo to DC bike ride, any thoughts on a route?
Saturday, April 21, 2012
Up and Down Weekend
I did find an interesting read on long rides and how to properly pee on the bike, gotta check it out,
http://www.amateurendurance.com/community-submissions/article/how-to-peeing-on-the-bike/ This is something anyone in endurance sports must deal with at some point.
I am also thinking of doing a ride from Home to D.C. to visit Amy in August. Would be a 400 mile ride, try for 4-5 days I think. I'll have to see how I recover from surgery but I think it would be a great time. Would get to see a lot of great sights, only thing that worries me is riding in D.C. I have never had to ride in city traffic, always lived in the country. We'll see what happens but things are looking great, and life is good.
Sunday, April 15, 2012
Review of Kashi Go Lean Crisp Cinnamon Crumble
The Facts
I will start by saying that this was a good tasting cereal for being a healthy alternative, but if you do have sensitive guts beware. I ate a bowel at 7AM and by 11AM the pain started. I had crazy gas pains for over 4 hours. Now just to make sure that it was the cereal and not something else I ate I put my guts on the line again and had a bowel at 330PM.(If you know me at all the minute the pain stops I just want to eat again) Sure enough by 730PM I had the same gas pains that lasted until 1130. I am not sure if it is the whole grains or all the fiber but I belly did not like it at all. So for all y'all IBS and IBD people just be careful on this one and let me know if you have the same problems or not.
Saturday, April 14, 2012
What an exciting week
As for Ironman training, we had some nice weather Friday so I was able to get in a nice 40 mile ride and did a 7 mile run this morning. The only thing I am worried about is I am going to lose 6 weeks of training to the surgery. Probably wont be able to start training until July, but will be praying for a quicker recovery. All in all I cant ask for more right now, things are great just keep me in your prayers.
Monday, April 9, 2012
My Review of EMS Solstice Switchback 25°/45° Sleeping Bag
Originally submitted at Eastern Mountain Sports
A versatile favorite, the Solstice Switchback 25°/45° sleeping bag has thicker insulation on one side so you can decide how much protection you need overnight.
Good for the price
Pros: Comfortable, Lightweight, Packs Small
Cons: Zipper Snags Easily
Best Uses: Backpacking, 3 Season Camping, Car Camping
Describe Yourself: Avid Adventurer
What Is Your Gear Style: Comfort Driven
Was this a gift?: No
I have used this sleeping bag in mid 20 temps and it did what it said it would do. It is fairly light and packs easily. Perfect for spring-fall hikes. The only problem I had was the zipper snagged easily.
(legalese)
Sunday, April 8, 2012
Time for a another new diet, Low Residue, Low Fiber
I don't have an official date for the surgery yet but am hoping I find out sometime this week. This is going to be very exciting time for me considering I have been carrying around this extra baggage for over 6 years now. If anybody else has gone through this please pass on any tips you may have. I'll keep y'all posted on how this low residue low fiber diet works, sounds pretty plain and boring but that'll be just fine for me if it works.
Saturday, April 7, 2012
Living with Pain
So now I feel good because I got my run in but now will probably hurt more because of it. I don't know if it is the OCD of wanting to train non stop or if I'm just crazy. At least I know I'll have some time off when I get my ostomy reversed, that sounds like a blast don't it.